The Caregivers' Journal
The Caregivers’ Journal is a tool that aims to assist caregivers in their journey of taking care of a child with cancer, especially in hospital-home transitions. The Journal was created by Pamela Lama Kafati, Sudeshna Mahata, and Antonia Yunge and co-designed with parents and nurses of children that battled cancer.
During the transition between hospital and home, caregivers of pediatric cancer patients experience information overload and feel overwhelmed by the responsibility of adequately caring for their sick child. This type of care involves organizing and keeping track of tons of information. We asked ourselves: how might we ease the transition between hospital and home for caregivers of pediatric cancer patients?
The goal of the Caregivers’ Journal is to reduce uncertainty, stress, and anxiety, and to restore a sense of control by building self-efficacy.
The Journal contains multiple pages with information and templates for caregivers to understand and keep track of their child's condition. It is customizable, easily transferable between multiple caregivers, and useful throughout the entire process.
The pages of the journal include information and templates for understanding the care plan and what to do in case of emergencies, medication, planning and scheduling, and keeping track of pain, blood counts, hydration and pee, poop, weight, height, among others.